Practical tools for families

Start with what you need.

Find reliable information, prepare for a meeting, understand disability-specific evaluations, or plan for education, work, and adult life.

Find help with blindness and low vision

Search practical lessons by everyday goals, tools, or skills. Build a small skill plan and schedule practice. For families, teachers, and caseworkers.

Family guides

Prepare before the meeting.

Read all three guides online without entering an email address. Newsletter signup is optional. Five-page print editions are also available. The online editions support text resizing and assistive technology. The PDF editions are designed for printing and are not certified as tagged accessible PDFs.

Free to share for educational and advocacy purposes with attribution. Please credit Rob Harris / AdvocateDadCO and retain the original source link.

Featured resource · Blind and low vision · Complex needs

Communication & Access: Start with the person.

Explore communication and participation supports for blind and low vision people with complex needs. This AdvocateDadCO guide brings together iPad accessibility, augmentative and alternative communication (AAC), tactile and object communication, auditory scanning, text and braille, routines, literacy, and self-advocacy.

For families, caregivers, teachers of students with visual impairments, speech-language pathologists, assistive technology teams, and other support professionals. Use it to compare options and plan an individualized trial.

Free to read and download. No email required. The online guide supports screen readers and text resizing; the PDF is designed for printing. Includes publisher sources and questions to guide a trial. Published October 2026.

Communication and Access for Blind and Low Vision People with Complex Needs: eight areas covering iPad access, tactile communication, auditory AAC, visual AAC, text and braille, routines, literacy, and self-advocacy. The complete text is available through Read the accessible guide.
Combine supports around the person’s goals, usable senses, movement, and daily life.

Featured collection · Braille STEM

Project INSPIRE

Free braille STEM professional development and student programs that strengthened Isabelle’s education and our family’s advocacy. Read the AdvocateDadCO feature, then go straight to the Paths to Literacy resources—no PDF gate.

Read the feature story

Trusted resource · Literacy and music

Library of Congress: National Library Service (NLS)

Free braille and audiobook library services for eligible readers, including people who are blind or have low vision and people with qualifying print disabilities. During our Washington, D.C., advocacy trip, Isabelle and I experienced a custom tour with tactile access and met with NLS leadership. These resources bring reading, learning, and music into everyday life.

Explore NLS Music Service and Materials · Request Braille on Demand books · Learn about NLS and enrollment

Already an NLS patron? Contact the Music Section at [email protected] or 800-424-8567, extension 2. Music services are requested directly from NLS.

Literacy for all. Including the music.

Open access · ONH

Optic nerve hypoplasia resource hub

Find 28 curated resources covering medical care, hormone monitoring, family support, education, research, and Colorado services. Includes questions to bring to appointments and school meetings.

Read the ONH resource hub — no email required

Family support · Epilepsy

Pediatric Epilepsy Surgery Alliance (PESA)

PESA supports families of children with drug-resistant epilepsy before and after surgery, with parent support navigators, education resources, and help finding services. For families navigating ONH alongside epilepsy, these resources can help connect medical care, school, and everyday support.

Explore PESA’s resources and family support

Featured guide from PESA

The (Almost) Everything List: Your Essential Guide

PESA’s curated guide covers surgery preparation and recovery, school supports, therapies, transition to adulthood, caregiver support, and financial resources. PESA notes that many resources also help families managing drug-resistant epilepsy whose child has not had surgery.

Read PESA’s introduction and access The (Almost) Everything List

Read “When ONH and epilepsy overlap” in the ONH resource hub

Open access · Colorado

100 Colorado parent questions

Find concrete next steps and checked resource contacts for dyslexia, individualized education programs (IEPs), Medicaid, caregiving, health care, and adult life. Includes the Dyslexia Foundation of Western Colorado and the family guides on this page.

Explore Colorado questions and resources — no email required

Need a different route?

Tell us what is missing or inaccessible.

If a resource does not work with your technology, or your family needs a starting point not covered here, contact AdvocateDadCO.

Contact Rob